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Text
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<a href="http://doi.org/10.1016/j.jpainsymman.2021.01.007" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.jpainsymman.2021.01.007</a>
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ISSN
1873-6513 0885-3924
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<a href="http://neomed.idm.oclc.org/login?url=http://doi.org/10.1016/j.jpainsymman.2021.01.007" target="_blank" rel="noreferrer noopener">NEOMED Full-text Holding (if available) - Proxy DOI: 10.1016/j.jpainsymman.2021.01.007</a>
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Update Year & Number
February 2021 List
NEOMED Department
NEOMED College of Medicine
Affiliated Hospital
Akron Children's Hospital
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Title
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Prioritization of Pediatric Palliative Care Field-Advancement Activities in the United States: Results of a National Survey.
Date
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2021
2021-01-21
Subject
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curriculum; financing; funding; palliative care; pediatric; quality of health care
Creator
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Feudtner Chris;Faerber JA;Rosenberg AR;Kobler K;Baker JN;Bowman BA;Wolfe J;Friebert S
Description
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BACKGROUND: The field of pediatric palliative care (PPC) continues to encounter challenges and opportunities to improving access to high-quality PPC services. In early 2019, a workshop identified eleven potential "next step" actions, and subsequently a national survey-based poll of members of the PPC community was conducted to prioritize these potential actions in terms of their "actionable importance." METHODS: Invitations to the survey were distributed in October 2019 to interdisciplinary PPC health care professionals via email to two major listservs, one hosted by the Section of Hospice and Palliative Medicine of the American Academy of Pediatrics, the other by the Center to Advance Palliative Care. Respondents rated the "actionable importance" of items relative to each other via a discrete choice experiment. Median importance scores are reported for each item. RESULTS: 177 individuals responded to the survey. The majority (62.2%) were physicians, with nurses (16.4%), advanced practice nurses (7.9%), and social workers (7.3%) being the other most common responders. The top 5 potential actions, in descending rank order, were: Determine what parents value regarding PPC (median score of 17.8, out of a total score of all items of 100); Define and disseminate core primary PPC curriculum (median, 15.3); Develop PPC national representation strategy and tactics (median, 12.3); Create PPC-specific program development toolkit (median, 10.9); and, Analyze payment and financing ratios (median, 9.6). CONCLUSIONS: Those seeking to advance the field of PPC should take into account the findings from this study, which suggest that certain actions are more likely to have a beneficial impact on moving the field forward.
Identifier
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<a href="http://doi.org/10.1016/j.jpainsymman.2021.01.007" target="_blank" rel="noreferrer noopener">10.1016/j.jpainsymman.2021.01.007</a>
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journalArticle
Publisher
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Journal Of Pain And Symptom Management
2021
Akron Children's Hospital
Baker JN
Bowman BA
Curriculum
Department of Pediatrics
Faerber JA
February 2021 List
Feudtner Chris
Financing
Friebert S
funding
Journal of pain and symptom management
journalArticle
Kobler K
NEOMED College of Medicine
Palliative Care
Pediatric
Quality of Health Care
Rosenberg AR
Wolfe J