1
40
2
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
URL Address
<a href="http://doi.org/10.1017/S1478951512000326" target="_blank" rel="noreferrer noopener">http://doi.org/10.1017/S1478951512000326</a>
Pages
307–314
Issue
4
Volume
11
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Direct care staff and parents'/legal guardians' perspectives on end-of-life care in a long-term care facility for medically fragile and intellectually disabled pediatric and young adult residents.
Publisher
An entity responsible for making the resource available
Palliative & supportive care
Date
A point or period of time associated with an event in the lifecycle of the resource
2013
2013-08
Subject
The topic of the resource
Adolescence; Adolescent; Adult; Aged; Caregivers – Psychosocial Factors; Caregivers/*psychology; Child; Clinical Assessment Tools; Disabled – Psychosocial Factors; Disabled Children/*psychology; Female; Hospital – Psychosocial Factors; Hospital/*psychology; Human; Humans; Impact of Events Scale; Infant; Long Term Care – Psychosocial Factors; Long-Term Care/*psychology; Male; Middle Age; Middle Aged; Newborn; Nursing Staff; Ohio; Parents – Psychosocial Factors; Parents/*psychology; Pediatric Nursing; Preschool; Scales; Terminal Care – Psychosocial Factors; Terminal Care/*psychology; Young Adult
Creator
An entity primarily responsible for making the resource
Grossberg Richard I; Blackford Martha; Friebert Sarah; Benore Ethan; Reed Michael D
Description
An account of the resource
OBJECTIVE: Children and young adults with severe disabilities and their families are faced with enormous challenges throughout the lifespan, including admitting the child to a long-term care facility (LTCF) and making end-of-life (EOL) care decisions. While children are residents of these specialized LTCF, the majority of their daily care, even up until death, is provided by nursing aides or habilitation aides (HAs) with limited training and educational backgrounds compared with other licensed healthcare providers. The purpose of this study was to determine the impact of a resident's EOL experience on the primary HAs and parents/guardians. METHOD: Thirty-five resident deaths occurred at Hattie Larlham Center for Children with Disabilities (HLCCD) between January 1, 2006 and February 28, 2009. The HAs and parents/legal guardians were identified for each death and invited to complete three surveys per resident (FAMCARE, Impact of Events Scale (IES)-revised, and Perspective on End-of-Life Care) to assess their experience. There were 112 surveys mailed to 62 HAs and 47 surveys mailed to 47 parents. RESULTS: Forty-two surveys were returned from 18/62 HAs (response rate 29%) and 11/47 parents/legal guardians completed the surveys (response rate 23%). The FAMCARE survey found that parents were more satisfied with the EOL care than were the HAs. The IES-revised found no difference in traumatic responses from either group. Comments from the Perspective on End-of-Life Care survey were analyzed qualitatively for common themes including pain control, respect, decision making, environmental needs, resources, and support. SIGNIFICANCE OF RESULTS: Because of a low response rate, it was difficult to draw significant conclusions; however, several interesting trends were noted regarding the number of deaths HAs experienced, satisfaction with care, and distress. The special needs of this population and their caregivers can provide crucial insights into interventions (e.g. chaplaincy support, debriefings, anticipatory counseling, environmental changes) that might be of benefit for any caregiver or parent of a child with a long-term, chronic condition, particularly involving developmental disability.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1017/S1478951512000326" target="_blank" rel="noreferrer noopener">10.1017/S1478951512000326</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. All rights are retained by the journal listed under publisher and/or the creator(s).
2013
Adolescence
Adolescent
Adult
Aged
Benore Ethan
Blackford Martha
Caregivers – Psychosocial Factors
Caregivers/*psychology
Child
Clinical Assessment Tools
Disabled – Psychosocial Factors
Disabled Children/*psychology
Female
Friebert Sarah
Grossberg Richard I
Hospital – Psychosocial Factors
Hospital/*psychology
Human
Humans
Impact of Events Scale
Infant
Long Term Care – Psychosocial Factors
Long-Term Care/*psychology
Male
Middle Age
Middle Aged
Newborn
Nursing Staff
Ohio
Palliative & supportive care
Parents – Psychosocial Factors
Parents/*psychology
Pediatric Nursing
Preschool
Reed Michael D
Scales
Terminal Care – Psychosocial Factors
Terminal Care/*psychology
Young Adult
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
URL Address
<a href="http://doi.org/10.1097/00124645-200701000-00008" target="_blank" rel="noreferrer noopener">http://doi.org/10.1097/00124645-200701000-00008</a>
Pages
36–44
Issue
1
Volume
23
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Impact of preceptor and orientee learning styles on satisfaction: a pilot study.
Publisher
An entity responsible for making the resource available
Journal for Nurses in Staff Development
Date
A point or period of time associated with an event in the lifecycle of the resource
2007
2007-01
Subject
The topic of the resource
Ohio; Program Evaluation; Education; Preceptorship; Health Services Needs and Demand; Human; Questionnaires; Funding Source; Mentorship; Evaluation Research; Pilot Studies; Test-Retest Reliability; Education Research; Learning Methods; Nurse Attitudes; T-Tests; Intraprofessional Relations; Models; Educational; Nursing Staff; Nursing; Hospital – Psychosocial Factors; Continuing – Administration; Hospital – Education; Nursing Practice – Education; Psychology – Education; Staff Development – Administration
Creator
An entity primarily responsible for making the resource
Brunt BA; Kopp DJ
Description
An account of the resource
This descriptive pilot study assessed the impact of learning style on satisfaction with orientation. Three learning style instruments were sent to all preceptors on inpatient units in two hospitals, and newly hired registered nurses and licensed practical nurses completed the same learning style instruments. Level of satisfaction with the orientation was used as the posttest measure. Matched t tests were compared to see whether the two groups had significant differences. Knowledge of the impact of learning styles on satisfaction can enhance the preceptor experience and perhaps increase retention.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/00124645-200701000-00008" target="_blank" rel="noreferrer noopener">10.1097/00124645-200701000-00008</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. All rights are retained by the journal listed under publisher and/or the creator(s).
2007
Brunt BA
Continuing – Administration
Education
Education Research
Educational
Evaluation Research
Funding Source
Health Services Needs and Demand
Hospital – Education
Hospital – Psychosocial Factors
Human
Intraprofessional Relations
Journal for Nurses in Staff Development
Kopp DJ
Learning Methods
Mentorship
Models
Nurse Attitudes
Nursing
Nursing Practice – Education
Nursing Staff
Ohio
Pilot Studies
Preceptorship
Program Evaluation
Psychology – Education
Questionnaires
Staff Development – Administration
T-Tests
Test-Retest Reliability