1
40
5
-
Text
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URL Address
<a href="http://doi.org/10.1007/s10072-015-2219-9" target="_blank" rel="noreferrer noopener">http://doi.org/10.1007/s10072-015-2219-9</a>
Pages
1617–1624
Issue
9
Volume
36
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Patient-reported Chiari malformation type I symptoms and diagnostic experiences: a report from the national Conquer Chiari Patient Registry database.
Publisher
An entity responsible for making the resource available
Neurological Sciences
Date
A point or period of time associated with an event in the lifecycle of the resource
2015
2015-09
Subject
The topic of the resource
ARNOLD-Chiari deformity; DIAGNOSTIC errors; MENTAL illness; SYMPTOMS; CAUCASIAN race – Health
Creator
An entity primarily responsible for making the resource
Fischbein Rebecca; Saling Julia; Marty Paige; Kropp Denise; Meeker James; Amerine Jenna; Chyatte Michelle
Description
An account of the resource
Chiari malformation (CM) is a condition in which cerebellar tonsillar ectopia may manifest with various clinical presentations. This study reports from the only national, online patient registry available, the symptoms, comorbid neurocognitive and psychological conditions, and diagnostic experiences of patients living with CM type I (CM I). The current research is one component of a large investigation designed to collect information from individuals with CM through the online Conquer Chiari Patient Registry questionnaire. Analyses included descriptive statistics to study body system impact and patient diagnostic experiences. Participants were 768 individuals with CM I and were predominantly female (86.8 %) and Caucasian (93.8 %) with an average age of 35 years. Pain was the most frequently reported symptom (76.69 %) experienced prior to diagnosis with headaches implicated most often (73.44 %). Neurocognitive comorbidities included memory difficulties (43.88 %) and aphasia (43.75 %) and psychological disorders such as depression (31.77 %) and anxiety disorders (19.92 %) were reported. Average time to diagnosis from first physician visit to diagnosis was 3.43 years, and only 8.46 % of patients had previous awareness of CM. CM I diagnosis was found incidentally for 24.87 % of participants. Common misdiagnoses were classified as psychological (19.26 %) and neurological (19.26 %). Fear was the most frequent emotion elicited at the time of correct diagnosis (42.19 %). CM I can be a challenging condition for patients and physicians, during both the search for diagnosis and management of symptoms. Patient and physician education about CM I may permit early intervention and the prevention of further deterioration and patient suffering. [ABSTRACT FROM AUTHOR]
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1007/s10072-015-2219-9" target="_blank" rel="noreferrer noopener">10.1007/s10072-015-2219-9</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. All rights are retained by the journal listed under publisher and/or the creator(s).
2015
Amerine Jenna
ARNOLD-Chiari deformity
CAUCASIAN race – Health
Chyatte Michelle
College of Medicine
Department of Family & Community Medicine
Diagnostic Errors
Fischbein Rebecca
Kropp Denise
Marty Paige
Meeker James
mental illness
NEOMED College of Medicine
Neurological Sciences
Saling Julia
Symptoms
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
URL Address
<a href="http://doi.org/10.1177/1049909115625612" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/1049909115625612</a>
Pages
435–441
Issue
5
Volume
34
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Development of a Scale to Assess Physician Advance Care Planning Self-Efficacy.
Publisher
An entity responsible for making the resource available
The American journal of hospice & palliative care
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
2017-06
Subject
The topic of the resource
*Self Efficacy; Adult; advance care planning; Advance Care Planning; Advance Care Planning/*organization & administration; Attitude of Health Personnel; Attitudes; Chronic Disease; Communication; Cross Sectional Studies; Cross-Sectional Studies; end-of-life care; Exploratory Research; family medicine; Family/*psychology; Female; Health Knowledge; Human; Humans; Instrument Construction; Instrument Validation; Male; Middle Aged; Physician-Patient Relations; Physicians; Physicians – Psychosocial Factors; Practice; Reliability and Validity; scale development; Scales; self-efficacy; Self-Efficacy – Evaluation; Surveys and Questionnaires/*standards; Terminal Care/psychology; Validation Studies
Creator
An entity primarily responsible for making the resource
Baughman Kristin R; Ludwick Ruth; Fischbein Rebecca; McCormick Kenelm; Meeker James; Hewit Mike; Drost Jennifer; Kropp Denise
Description
An account of the resource
BACKGROUND: Although patients prefer that physicians initiate advance care planning (ACP) conversations, few physicians regularly do so. Physicians may be reluctant to initiate ACP conversations because they lack self-efficacy in their skills. Yet, no validated scale on self-efficacy for ACP exists. Our objective was to develop a scale that measures physicians' ACP self-efficacy (ACP-SE) and to investigate the validity of the tool. METHODS: Electronic questionnaires were administered to a random sample of family medicine physicians (n = 188). Exploratory factor analysis was performed to determine whether the scale was multidimensional. An initial assessment of the scale's validity was also conducted. RESULTS: The exploratory factor analysis indicated that a single factor was appropriate using all 17 items. A single, unidimensional scale was created by averaging the 17 items, yielding good internal consistency (Cronbach alpha = 0.95). The average scale score was 3.94 (standard deviation = 0.71) on a scale from 1 to 5. The scale was moderately correlated with a global single-item measure of self-efficacy for ACP ( r = .79, P \textless .001), and the scale differentiated between physician groups based on how much ACP they were doing, how recently they had an ACP conversation, formal training on ACP, and knowledge of ACP. In a multivariate analysis, the ACP-SE scale was a strong predictor of the percentage of patients with chronic life-limiting diseases with whom the physician discussed ACP. CONCLUSION: The final ACP-SE scale included 17 items and demonstrated high internal consistency.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/1049909115625612" target="_blank" rel="noreferrer noopener">10.1177/1049909115625612</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. All rights are retained by the journal listed under publisher and/or the creator(s).
*Self Efficacy
2017
Adult
advance care planning
Advance Care Planning/*organization & administration
Attitude of Health Personnel
Attitudes
Baughman Kristin R
Chronic Disease
College of Medicine
Communication
Cross Sectional Studies
Cross-Sectional Studies
Department of Family & Community Medicine
Drost Jennifer
end-of-life care
Exploratory Research
family medicine
Family/*psychology
Female
Fischbein Rebecca
Health Knowledge
Hewit Mike
Human
Humans
Instrument Construction
Instrument Validation
Kropp Denise
Ludwick Ruth
Male
McCormick Kenelm
Meeker James
Middle Aged
NEOMED College of Medicine
Physician-Patient Relations
Physicians
Physicians – Psychosocial Factors
Practice
Reliability and Validity
scale development
Scales
self-efficacy
Self-Efficacy – Evaluation
Surveys and Questionnaires/*standards
Terminal Care/psychology
The American journal of hospice & palliative care
Validation Studies
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
URL Address
<a href="http://doi.org/10.1089/pop.2014.0128" target="_blank" rel="noreferrer noopener">http://doi.org/10.1089/pop.2014.0128</a>
Pages
358–366
Issue
5
Volume
18
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Associations between Difficulty Paying Medical Bills and Forgone Medical and Prescription Drug Care.
Publisher
An entity responsible for making the resource available
Population Health Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2015
2015-10
Subject
The topic of the resource
*Fees; *Health Expenditures; *Health Services Accessibility; *Patient Compliance; *Prescription Fees; Adult; Aged; Bisexuals; Cross-Sectional Studies; Debt; Drug; Family Health; Female; Financial; Health Status; Health Surveys; Homeless Persons; Humans; Male; Medical; Middle Aged; Ohio; Population Characteristics; Prescriptions; Socioeconomic Factors; Special Populations; Young Adult
Creator
An entity primarily responsible for making the resource
Baughman Kristin R; Burke Ryan C; Hewit Michael S; Sudano Joseph J; Meeker James; Hull Sharon K
Description
An account of the resource
Problems paying medical bills have been reported to be associated with increased stress, bankruptcy, and forgone medical care. Using the Behavioral Model for Vulnerable Populations developed by Gelberg et al as a framework, as well as data from the 2010 Ohio Family Health Survey, this study examined the relationships between difficulty paying medical bills and forgone medical and prescription drug care. Logistic regression was used to examine associations between difficulty paying medical bills and predisposing, enabling, need (health status), and health behaviors (forgoing medical care). Difficulty paying medical bills increased the effect of lack of health insurance in predicting forgone medical care and had a conditional effect on the association between education and forgone prescription drug care. Those who had less than a bachelor's degree were more likely to forgo prescription drug care than those with a bachelor's degree, but only if they had difficulty paying medical bills. Difficulty paying medical bills also accounted for the relationships between several population characteristics (eg, age, income, home ownership, health status) in predicting forgone medical and prescription drug care. Policies to cap out-of-pocket medical expenses may mitigate health disparities by addressing the impact of difficulty paying medical bills on forgone care.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1089/pop.2014.0128" target="_blank" rel="noreferrer noopener">10.1089/pop.2014.0128</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. All rights are retained by the journal listed under publisher and/or the creator(s).
*Fees
*Health Expenditures
*Health Services Accessibility
*Patient Compliance
*Prescription Fees
2015
Adult
Aged
Baughman Kristin R
Bisexuals
Burke Ryan C
Cross-Sectional Studies
debt
Department of Family & Community Medicine
Drug
Family Health
Female
Financial
Health Status
Health Surveys
Hewit Michael S
Homeless Persons
Hull Sharon K
Humans
Male
Medical
Meeker James
Middle Aged
NEOMED College of Medicine
Ohio
Population Characteristics
Population health management
Prescriptions
Socioeconomic Factors
Special Populations
Sudano Joseph J
Young Adult
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
URL Address
<a href="http://doi.org/10.1017/S1463423614000504" target="_blank" rel="noreferrer noopener">http://doi.org/10.1017/S1463423614000504</a>
Pages
461–469
Issue
5
Volume
16
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The assessment and treatment of back and neck pain: an initial investigation in a primary care practice-based research network.
Publisher
An entity responsible for making the resource available
Primary health care research & development
Date
A point or period of time associated with an event in the lifecycle of the resource
2015
2015-09
Subject
The topic of the resource
*Research; 80 and over; acute back and neck pain; Acute Disease; Adult; Aged; Back Pain; chronic back and neck pain; Chronic Pain; Chronic Pain/diagnosis/therapy; Female; Human; Humans; Logistic Regression; Low Back Pain; Low Back Pain/*diagnosis/*therapy; Male; Middle Aged; Neck Pain; Neck Pain/*diagnosis/*therapy; non-malignant back and neck pain; Pain Measurement; primary care providers; Primary Health Care; Primary Health Care/*methods; Prospective Studies; Surveys; T-Tests; Treatment Outcome; Young Adult
Creator
An entity primarily responsible for making the resource
Fischbein Rebecca; McCormick Kenelm; Selius Brian A; Schrop Susan Labuda; Hewit Michael; Baughman Kristin; Meeker James
Description
An account of the resource
AIM: The purpose of this study was to conduct an exploratory examination of the current state of non-malignant acute and chronic back and neck pain assessment and management among primary care providers in a multi-site, practice-based research network. BACKGROUND: Acute and chronic pain are distinct conditions that often require different assessment and management approaches, however, little research has examined assessment and management of acute and chronic pain as separate conditions. The large majority of patients with acute and chronic back and neck pain are managed in primary care settings. Given the differences between acute and chronic pain, it is necessary to identify differences in patient characteristics, practitioner evaluation, treatment and management in primary care settings. METHODS: Over a two-week period, 24 practitioners in a multi-site practice-based research network completed 196 data cards about 39 patients experiencing acute back and neck pain and 157 patients suffering from chronic back and neck pain. Findings There were significant differences between the patients experiencing acute and chronic pain in regards to practitioner evaluation, current medication management and current treatment for depression. In addition, diagnostics differed between patients experiencing acute versus chronic back and neck pain. Further, primary care providers' review of online drug monitoring program reports during the current visit was associated with current medication management using short term opioids, long-term opioids or tramadol. Most research examining acute and chronic pain focuses on the low back. Additional research needs to be conducted to explore and compare acute and chronic pain across the whole spine.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1017/S1463423614000504" target="_blank" rel="noreferrer noopener">10.1017/S1463423614000504</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. All rights are retained by the journal listed under publisher and/or the creator(s).
*Research
2015
80 and over
acute back and neck pain
Acute Disease
Adult
Aged
back pain
Baughman Kristin
chronic back and neck pain
Chronic pain
Chronic Pain/diagnosis/therapy
College of Medicine
Department of Family & Community Medicine
Female
Fischbein Rebecca
Hewit Michael
Human
Humans
Logistic Regression
Low Back Pain
Low Back Pain/*diagnosis/*therapy
Male
McCormick Kenelm
Meeker James
Middle Aged
Neck Pain
Neck Pain/*diagnosis/*therapy
NEOMED College of Medicine
non-malignant back and neck pain
Pain Measurement
primary care providers
Primary Health Care
Primary health care research & development
Primary Health Care/*methods
Prospective Studies
Schrop Susan Labuda
Selius Brian A
Surveys
T-Tests
Treatment Outcome
Young Adult
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
URL Address
<a href="http://doi.org/10.1016/j.dhjo.2015.01.003" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.dhjo.2015.01.003</a>
Pages
521–526
Issue
4
Volume
8
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The impact of Chiari malformation on daily activities: A report from the national Conquer Chiari Patient Registry database.
Publisher
An entity responsible for making the resource available
Disability and health journal
Date
A point or period of time associated with an event in the lifecycle of the resource
2015
2015-10
Subject
The topic of the resource
*Activities of Daily Living; *Disabled Persons; *Quality of Life; Adult; Arnold-Chiari malformation; Arnold-Chiari Malformation/classification/*complications; Automobile Driving; Daily living; Databases; Factual; Female; Food Handling; Housekeeping; Humans; Male; Middle Aged; Physical activities; Quality of life; Recreational activities; Registries; Severity of Illness Index; United States; Walking
Creator
An entity primarily responsible for making the resource
Meeker James; Amerine Jenna; Kropp Denise; Chyatte Michelle; Fischbein Rebecca
Description
An account of the resource
BACKGROUND: Chiari malformation (CM) is characterized by herniation of the cerebellar tonsils into the cervical spine. While ample literature on CM exists for clinical and procedural aspects of the disease, few studies have measured the impact CM has on daily activities. OBJECTIVE: The objective of this study was to measure the impact that CM has on daily living activities. METHODS: Data was analyzed from 798 CM patients gathered by the national Conquer Chiari Patient Registry database. RESULTS: Results indicate CM is associated with negative impact on daily living and physical activities for patients, even those exhibiting mild symptoms. Participants with severe symptoms experience the greatest deficit with regards to daily living such as difficulty walking, driving, housecleaning and food preparation. CONCLUSIONS: As 96.1% of CM patients report impact in one or more areas of daily living, CM is classified as a disability according to 42 U.S. CODE section sign 12101 (Americans with Disabilities Act). The degree of self-reported CM symptom severity is strongly related to the frequency and extent of limitations in both physical and daily activities.
Identifier
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<a href="http://doi.org/10.1016/j.dhjo.2015.01.003" target="_blank" rel="noreferrer noopener">10.1016/j.dhjo.2015.01.003</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. All rights are retained by the journal listed under publisher and/or the creator(s).
*Activities of Daily Living
*Disabled Persons
*Quality of Life
2015
Adult
Amerine Jenna
Arnold-Chiari malformation
Arnold-Chiari Malformation/classification/*complications
Automobile Driving
Chyatte Michelle
College of Medicine
Daily living
Databases
Department of Family & Community Medicine
Disability and health journal
Factual
Female
Fischbein Rebecca
Food Handling
Housekeeping
Humans
Kropp Denise
Male
Meeker James
Middle Aged
NEOMED College of Medicine
Physical activities
Quality of Life
Recreational activities
Registries
Severity of Illness Index
United States
Walking