Description
Our objective was to better understand the values and ethical dilemmas surrounding advance care planning through stories told by registered nurses and licensed social workers, who were employed as care managers within Area Agencies on Aging. We conducted eight focus groups in which care managers were invited to tell their stories and answer open-ended questions focusing on their interactions with consumers receiving home-based long-term care. Using narrative analysis to understand how our participants thought through particular experiences and what they valued, we identified seven themes representative of their work with consumers and families: humility, respect, responsibilities, boundaries, empowerment, courage, and veracity.
Subject
*Long-Term Care; Accountability; Advance care planning; Advance Care Planning – Ethical Issues; Advance Care Planning/*ethics; care managers; Case Managers; Courage; Decision Making/*ethics; Empowerment; end-of-life decisions; ethical dilemmas; Ethics; Focus Groups; Funding Source; Human; Humans; narrative analysis; Narratives; Nurses/*psychology; Ohio; Open-Ended Questionnaires; Patient Care Management/*ethics; Professional; Qualitative Studies; Questionnaires; registered nurses; Registered Nurses; Respect; Secondary Analysis; social workers; Social Workers; Thematic Analysis