1
40
5
-
Text
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URL Address
<a href="http://doi.org/10.1002/pbc.28234" target="_blank" rel="noreferrer noopener">http://doi.org/10.1002/pbc.28234</a>
Pages
e28234
Issue
8
Volume
67
ISSN
1545-5017 1545-5009
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Update Year & Number
Hospital List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Mucosal barrier injury-associated bloodstream infections in pediatric oncology patients.
Publisher
An entity responsible for making the resource available
Pediatric Blood & Cancer
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
2020-08
Subject
The topic of the resource
Humans; Male; Female; Child; Child Preschool; Bacterial Infections/epidemiology/therapy; bloodstream infections; CLABSI; Databases Factual; hematology; mucosal barrier injury; Neoplasms/epidemiology/therapy; Neutropenia/epidemiology/therapy; oncology; pediatric; transplant; Mucous Membrane/injuries
Creator
An entity primarily responsible for making the resource
Hakim H; Billett AL; Xu J; Tang L; Richardson T; Winkle C; Werner EJ; Hord JD; Bundy DG; Gaur AH
Description
An account of the resource
BACKGROUND: Single-center reports of central line-associated bloodstream infection (CLABSI) and the subcategory of mucosal barrier injury laboratory-confirmed bloodstream infection (MBI-LCBI) in pediatric hematology oncology transplant (PHO) patients have focused on the inpatient setting. Characterization of MBI-LCBI across PHO centers and management settings (inpatient and ambulatory) is urgently needed to inform surveillance and prevention strategies. METHODS: Prospectively collected data from August 1, 2013, to December 31, 2015, on CLABSI (including MBI-LCBI) from a US PHO multicenter quality improvement network database was analyzed. CDC National Healthcare Safety Network definitions were applied for inpatient events and adapted for ambulatory events. RESULTS: Thirty-five PHO centers reported 401 ambulatory and 416 inpatient MBI-LCBI events. Ambulatory and inpatient MBI-LCBI rates were 0.085 and 1.01 per 1000 line days, respectively. Fifty-three percent of inpatient CLABSIs were MBI-LCBIs versus 32% in the ambulatory setting (P < 0.01). Neutropenia was the most common criterion defining MBI-LCBI in both settings, being present in ≥90% of events. The most common organisms isolated in MBI-LCBI events were Escherichia coli (in 28% of events), Klebsiella spp. (23%), and viridans streptococci (12%) in the ambulatory setting and viridans streptococci (in 29% of events), E. coli (14%), and Klebsiella spp. (14%) in the inpatient setting. CONCLUSION: In this largest study of PHO MBI-LCBI inpatient events and the first such study in the ambulatory setting, the burden of MBI-LCBI across the continuum of care of PHO patients was substantial. These data should raise awareness of MBI-LCBI among healthcare providers for PHO patients, help benchmarking across centers, and help inform prevention and treatment strategies.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1002/pbc.28234" target="_blank" rel="noreferrer noopener">10.1002/pbc.28234</a>
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Article information provided for research and reference use only. All rights are retained by the journal listed under publisher and/or the creator(s).
Format
The file format, physical medium, or dimensions of the resource
journalArticle
2020
Bacterial Infections/epidemiology/therapy
Billett AL
bloodstream infections
Bundy DG
Child
Child Preschool
CLABSI
Databases Factual
Female
Gaur AH
Hakim H
Hematology
Hord JD
Hospital List
Humans
journalArticle
Male
mucosal barrier injury
Mucous Membrane/injuries
Neoplasms/epidemiology/therapy
Neutropenia/epidemiology/therapy
oncology
Pediatric
Pediatric blood & cancer
Richardson T
Tang L
transplant
Werner EJ
Winkle C
Xu J
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
URL Address
<a href="http://doi.org/10.1002/pbc.28599" target="_blank" rel="noreferrer noopener">http://doi.org/10.1002/pbc.28599</a>
Pages
e28599
ISSN
1545-5009
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Update Year & Number
August 2020 List
NEOMED College
NEOMED College of Medicine
NEOMED Department
Department of Family & Community Medicine
Department of Pediatrics
Affiliated Hospital
Akron Children's Hospital
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
"Living life as if i never had cancer": A study of the meaning of living well in adolescents and young adults who have experienced cancer
Publisher
An entity responsible for making the resource available
Pediatric Blood & Cancer
Subject
The topic of the resource
childhood; definition; quality of life; advance care planning; cancer; adolescent; advance care
Creator
An entity primarily responsible for making the resource
Schreiner K; Grossoehme DH; Friebert S; Baker JN; Needle J; Lyon ME
Description
An account of the resource
Background Cancer diagnoses pose challenges to adolescents' and young adults' (AYA) physical, mental, and emotional health, and developmental tasks. In order for AYAs, caregivers, clinicians, and other collaborators to optimize health outcomes (coproduction of health), understanding what living well means for AYAs who have experienced cancer is necessary. The objective was to develop an empirical definition of "living well" for AYAs who have experienced cancer to broadly understand AYA values and priorities. This definition may ultimately guide future conversations between caregivers and AYAs, eliciting thorough, personal definitions of living well from individual AYAs. Such conversations may enhance AYA participation in coproducing their health. Procedure Qualitative analysis using a phenomenological approach of N = 30 structuredRespecting Choicesinterviews conducted with AYAs (14-21 years; mean 84.2 [SD 69] months postcancer diagnosis with 21% on active treatment) from four tertiary pediatric hospitals in the context of a primary study of a pediatric advance care planning intervention trial. Results AYAs who have experienced cancer conceptualized "living well" as maintaining physical, mental, and emotional health, as well as engaging in purposeful, age-appropriate activities with people important to them. Living well had three components: living mindfully, living an identity as a healthy AYA, and spending time with friends and family. Conclusions Conversations with AYAs who have experienced cancer elicited rich, complex concepts of "living well." Provider initiation of discussions about living well may facilitate personalized goals of care conversations. This study may serve as the basis to design and prototype future clinical interventions to enhance AYA engagement.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1002/pbc.28599" target="_blank" rel="noreferrer noopener">10.1002/pbc.28599</a>
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Article information provided for research and reference use only. All rights are retained by the journal listed under publisher and/or the creator(s).
Format
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journalArticle
Adolescent
advance care
advance care planning
Akron Children's Hospital
August 2020 List
Baker JN
Cancer
childhood
definition
Department of Family & Community Medicine
Department of Pediatrics
Friebert S
Grossoehme DH
journalArticle
Lyon ME
Needle J
NEOMED College of Medicine
Pediatric blood & cancer
Quality of Life
Schreiner K
-
Text
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URL Address
<a href="http://doi.org/10.1093/neuonc/noz175.767" target="_blank" rel="noreferrer noopener">http://doi.org/10.1093/neuonc/noz175.767</a>
Rights
Article information provided for research and reference use only. All rights are retained by the journal listed under publisher and/or the creator(s).
Pages
S57-S58
Issue
4, SI
Volume
66
ISSN
1545-5009
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<a href="http://ezproxy.neomed.idm.oclc.org/login?url=http://doi.org/10.1093/neuonc/noz175.767" target="_blank" rel="noreferrer noopener">NEOMED Full-text Holding (if available) - Proxy DOI: 10.1093/neuonc/noz175.767</a>
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Dublin Core
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Title
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Chemotherapy Strategies for Young Children Newly-Diagnosed with Medulloblastoma up to the Era of Molecular Profiling - A Comparative Outcomes Analysis
Publisher
An entity responsible for making the resource available
Pediatric Blood & Cancer
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
2019-12
Creator
An entity primarily responsible for making the resource
Finlay J; Mynarek M; Dhall G; Lafay-Cousin L; Mazewski C M; Ashley D; Cohen B H; von Bueren A O; Gerber N; Leary S; Geyer J R; Tait D; Gajjar A; Rutkowski S
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1093/neuonc/noz175.767" target="_blank" rel="noreferrer noopener">10.1093/neuonc/noz175.767</a>
Format
The file format, physical medium, or dimensions of the resource
Journal Article
2019
Akron Children's Hospital
Ashley D
Cohen B H
Department of Integrative Medical Sciences
Department of Pediatrics
Dhall G
Finlay J
Gajjar A
Gerber N
Geyer J R
Journal Article
Lafay-Cousin L
Leary S
Mazewski C M
Mynarek M
NEOMED College of Medicine
November 2019 Update
Pediatric blood & cancer
Rutkowski S
Tait D
von Bueren A O
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
URL Address
<a href="http://doi.org/10.1002/pbc.25218" target="_blank" rel="noreferrer noopener">http://doi.org/10.1002/pbc.25218</a>
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Article information provided for research and reference use only. All rights are retained by the journal listed under publisher and/or the creator(s).
Pages
160-162
Issue
1
Volume
62
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Title
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Relapsed Perinatal Neuroblastoma After Expectant Observation
Publisher
An entity responsible for making the resource available
Pediatric Blood & Cancer
Date
A point or period of time associated with an event in the lifecycle of the resource
2015
2015-01
Subject
The topic of the resource
age; Hematology; heterogeneity; infants; neuro-blastoma; neuro-blastoma; neuroblastoma biology; Oncology; Pediatrics; regression; relapse
Creator
An entity primarily responsible for making the resource
Salloum R; Garrison A; von Allmen D; Sheridan R; Towbin A J; Adams D; Weiss B
Description
An account of the resource
The Children's Oncology Group (COG) study ANBL00P2 showed that expectant observation of patients younger than six months of age with perinatal neuroblastoma presenting as a small adrenal mass yields excellent overall survival and spares surgical resection to the majority of patients. We report a 5-year-old female who was initially diagnosed with a perinatal neuroblastoma. The patient was observed on COG study ANBL00P2. By nine months of age she had no ultrasonographic or biochemical evidence of disease. She presented four years later with abdominal pain and was found to have high-risk stage 4 MYCN amplified neuroblastoma. Pediatr Blood Cancer 2015;62:160-162. (c) 2014 Wiley Periodicals, Inc.
Identifier
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<a href="http://doi.org/10.1002/pbc.25218" target="_blank" rel="noreferrer noopener">10.1002/pbc.25218</a>
Format
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Journal Article
2015
Adams D
Age
Garrison A
Hematology
heterogeneity
Infants
Journal Article
neuro-blastoma
neuroblastoma biology
oncology
Pediatric blood & cancer
Pediatrics
Regression
relapse
Salloum R
Sheridan R
Towbin A J
von Allmen D
Weiss B
-
Text
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URL Address
<a href="http://doi.org/10.1002/pbc.20075" target="_blank" rel="noreferrer noopener">http://doi.org/10.1002/pbc.20075</a>
Pages
542–544
Issue
5
Volume
43
Dublin Core
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Title
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Growth hormone therapy for short stature in Diamond Blackfan anemia.
Publisher
An entity responsible for making the resource available
Pediatric blood & cancer
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
2004-10
Subject
The topic of the resource
Adolescent; Anemia; Body Height; Diamond-Blackfan/*complications; Growth Disorders/*drug therapy/*etiology; Human Growth Hormone/pharmacology/*therapeutic use; Humans; Male; Treatment Outcome
Creator
An entity primarily responsible for making the resource
Scott Emily Gale; Haider Anzar; Hord Jeffrey
Description
An account of the resource
BACKGROUND: We report a 13-year-old male with Diamond Blackfan anemia and short stature. He had a normal biochemical response to growth hormone (GH) stimulation, but his bone age was delayed, his insulin-like growth factor 1 (IGF-1) was low, and he had a poor growth velocity. He was started on daily GH injections. METHODS: From the patient's medical record the following data were collected: serial heights, serial weights, hemoglobin, hematocrit, bone age, IGF-1, and steroid dose. RESULTS: This patient had an increase in growth velocity up to 8.2 cm/year. CONCLUSIONS: Growth hormone therapy should be considered in children with DBA, short stature and poor growth velocity.
Identifier
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<a href="http://doi.org/10.1002/pbc.20075" target="_blank" rel="noreferrer noopener">10.1002/pbc.20075</a>
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Article information provided for research and reference use only. All rights are retained by the journal listed under publisher and/or the creator(s).
2004
Adolescent
Anemia
Body Height
Diamond-Blackfan/*complications
Growth Disorders/*drug therapy/*etiology
Haider Anzar
Hord Jeffrey
Human Growth Hormone/pharmacology/*therapeutic use
Humans
Male
Pediatric blood & cancer
Scott Emily Gale
Treatment Outcome