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Text
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URL Address
<a href="http://doi.org/10.1016/j.dhjo.2015.01.003" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.dhjo.2015.01.003</a>
Pages
521–526
Issue
4
Volume
8
Dublin Core
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Title
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The impact of Chiari malformation on daily activities: A report from the national Conquer Chiari Patient Registry database.
Publisher
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Disability and health journal
Date
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2015
2015-10
Subject
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*Activities of Daily Living; *Disabled Persons; *Quality of Life; Adult; Arnold-Chiari malformation; Arnold-Chiari Malformation/classification/*complications; Automobile Driving; Daily living; Databases; Factual; Female; Food Handling; Housekeeping; Humans; Male; Middle Aged; Physical activities; Quality of life; Recreational activities; Registries; Severity of Illness Index; United States; Walking
Creator
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Meeker James; Amerine Jenna; Kropp Denise; Chyatte Michelle; Fischbein Rebecca
Description
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BACKGROUND: Chiari malformation (CM) is characterized by herniation of the cerebellar tonsils into the cervical spine. While ample literature on CM exists for clinical and procedural aspects of the disease, few studies have measured the impact CM has on daily activities. OBJECTIVE: The objective of this study was to measure the impact that CM has on daily living activities. METHODS: Data was analyzed from 798 CM patients gathered by the national Conquer Chiari Patient Registry database. RESULTS: Results indicate CM is associated with negative impact on daily living and physical activities for patients, even those exhibiting mild symptoms. Participants with severe symptoms experience the greatest deficit with regards to daily living such as difficulty walking, driving, housecleaning and food preparation. CONCLUSIONS: As 96.1% of CM patients report impact in one or more areas of daily living, CM is classified as a disability according to 42 U.S. CODE section sign 12101 (Americans with Disabilities Act). The degree of self-reported CM symptom severity is strongly related to the frequency and extent of limitations in both physical and daily activities.
Identifier
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<a href="http://doi.org/10.1016/j.dhjo.2015.01.003" target="_blank" rel="noreferrer noopener">10.1016/j.dhjo.2015.01.003</a>
Rights
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Article information provided for research and reference use only. All rights are retained by the journal listed under publisher and/or the creator(s).
*Activities of Daily Living
*Disabled Persons
*Quality of Life
2015
Adult
Amerine Jenna
Arnold-Chiari malformation
Arnold-Chiari Malformation/classification/*complications
Automobile Driving
Chyatte Michelle
College of Medicine
Daily living
Databases
Department of Family & Community Medicine
Disability and health journal
Factual
Female
Fischbein Rebecca
Food Handling
Housekeeping
Humans
Kropp Denise
Male
Meeker James
Middle Aged
NEOMED College of Medicine
Physical activities
Quality of Life
Recreational activities
Registries
Severity of Illness Index
United States
Walking