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Text
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URL Address
<a href="http://doi.org/10.1177/2374373517736760" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/2374373517736760</a>
Pages
134–139
Issue
2
Volume
5
Dublin Core
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Title
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Twin-Twin Transfusion Syndrome and Maternal Symptomatology-An Exploratory Analysis of Patient Experiences When Reporting Complaints.
Publisher
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Journal of patient experience
Date
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2018
2018-06
Subject
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maternal symptomatology; MCDA; monochorionic-diamniotic; patient experience; reporting; TTTS; twin-twin transfusion syndrome
Creator
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Nicholas Lauren; Fischbein Rebecca; Falletta Lynn; Baughman Kristin
Description
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Objective: The aim of this study was to assess patient experiences when reporting symptoms of twin-twin transfusion syndrome (TTTS) to their health-care providers. Methodology: The study utilized an online, retrospective survey of women, over the age of 18, who were living in the United States at the time of their pregnancy and had completed a TTTS pregnancy. Results: Three hundred sixty-seven cases were included for analysis. Nearly half of the respondents (45.2%) reported experiencing maternal symptoms prior to TTTS diagnosis. The average number of symptoms experienced was 2.85. The average gestational week of symptom onset was 18.2. A total of 76.2% of respondents experiencing symptoms shared these concerns with their health-care provider; however, slightly more than half (51.2%) believed that the provider dismissed their complaints. Conclusions: Results suggest a disconnect between patients' reporting TTTS symptoms and health-care providers responding attentively, as perceived by the patient. It would be advantageous for health-care providers to inform women pregnant with a monochorionic-diamniotic pregnancy to immediately report the presence of any symptom described in the present research, which may be associated with any number of twin pregnancy-related complications.
Identifier
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<a href="http://doi.org/10.1177/2374373517736760" target="_blank" rel="noreferrer noopener">10.1177/2374373517736760</a>
Rights
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Article information provided for research and reference use only. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
Baughman Kristin
College of Medicine
Department of Family & Community Medicine
Falletta Lynn
Fischbein Rebecca
Journal of patient experience
maternal symptomatology
MCDA
monochorionic-diamniotic
NEOMED College of Medicine
Nicholas Lauren
patient experience
reporting
TTTS
twin-twin transfusion syndrome