Needs, priorities, and attitudes of individuals with spinal cord injury toward nerve stimulation devices for bladder and bowel function: a survey.

Title

Needs, priorities, and attitudes of individuals with spinal cord injury toward nerve stimulation devices for bladder and bowel function: a survey.

Creator

Bourbeau D; Bolon A; Creasey G; Dai W; Fertig B; French J; Jeji T; Kaiser A; Kouznetsov R; Rabchevsky A; Santacruz BG; Sun J; Thor KB; Wheeler T; Wierbicky J

Publisher

Spinal Cord

Date

2020
2020-09-07

Description

STUDY DESIGN: Survey. OBJECTIVES: To investigate the needs and priorities of people with spinal cord injury for managing neurogenic bladder and bowel function and to determine their willingness to adopt neuromodulation interventions for these functions. METHODS: Anonymous online survey. It was advertised by word-of-mouth by community influencers and social media, and by advertisement in newsletters of advocacy groups. RESULTS: Responses from 370 individuals (27% female, 73% male) were included. Bladder emptying without catheters was the top priority for restoring bladder function, and maintaining fecal continence was the top priority for restoring bowel function. The biggest concerns regarding external stimulation systems were wearing a device with wires connecting to electrodes on the skin and having to don and doff the system daily as needed. The biggest concerns for implanted systems were the chances of experiencing problems with the implant that required a revision surgery or surgical removal of the whole system. Respondents were willing to accept an external (61%) or implanted (41%) device to achieve improved bladder or bowel function. CONCLUSIONS: Bladder and bowel dysfunction remain important unmet challenges for individuals living with SCI who answered our survey. These individuals are willing to accept some potential risks of nerve stimulation approaches given potential benefits. Additional consumer input is critical for guiding both research and translation to clinical use and personalized medicine.

Rights

Article information provided for research and reference use only. All rights are retained by the journal listed under publisher and/or the creator(s).

Format

journalArticle

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ISSN

1476-5624 1362-4393

Update Year & Number

Hospital List

Citation

Bourbeau D; Bolon A; Creasey G; Dai W; Fertig B; French J; Jeji T; Kaiser A; Kouznetsov R; Rabchevsky A; Santacruz BG; Sun J; Thor KB; Wheeler T; Wierbicky J, “Needs, priorities, and attitudes of individuals with spinal cord injury toward nerve stimulation devices for bladder and bowel function: a survey.,” NEOMED Bibliography Database, accessed May 9, 2021, https://neomed.omeka.net/items/show/11434.

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