The impact of Chiari malformation on daily activities: A report from the national Conquer Chiari Patient Registry database.

Title

The impact of Chiari malformation on daily activities: A report from the national Conquer Chiari Patient Registry database.

Creator

Meeker James; Amerine Jenna; Kropp Denise; Chyatte Michelle; Fischbein Rebecca

Publisher

Disability and health journal

Date

2015
2015-10

Description

BACKGROUND: Chiari malformation (CM) is characterized by herniation of the cerebellar tonsils into the cervical spine. While ample literature on CM exists for clinical and procedural aspects of the disease, few studies have measured the impact CM has on daily activities. OBJECTIVE: The objective of this study was to measure the impact that CM has on daily living activities. METHODS: Data was analyzed from 798 CM patients gathered by the national Conquer Chiari Patient Registry database. RESULTS: Results indicate CM is associated with negative impact on daily living and physical activities for patients, even those exhibiting mild symptoms. Participants with severe symptoms experience the greatest deficit with regards to daily living such as difficulty walking, driving, housecleaning and food preparation. CONCLUSIONS: As 96.1% of CM patients report impact in one or more areas of daily living, CM is classified as a disability according to 42 U.S. CODE section sign 12101 (Americans with Disabilities Act). The degree of self-reported CM symptom severity is strongly related to the frequency and extent of limitations in both physical and daily activities.

Subject

*Activities of Daily Living; *Disabled Persons; *Quality of Life; Adult; Arnold-Chiari malformation; Arnold-Chiari Malformation/classification/*complications; Automobile Driving; Daily living; Databases; Factual; Female; Food Handling; Housekeeping; Humans; Male; Middle Aged; Physical activities; Quality of life; Recreational activities; Registries; Severity of Illness Index; United States; Walking

Rights

Article information provided for research and reference use only. All rights are retained by the journal listed under publisher and/or the creator(s).

Pages

521–526

Issue

4

Volume

8

Citation

Meeker James; Amerine Jenna; Kropp Denise; Chyatte Michelle; Fischbein Rebecca, “The impact of Chiari malformation on daily activities: A report from the national Conquer Chiari Patient Registry database.,” NEOMED Bibliography Database, accessed October 20, 2021, https://neomed.omeka.net/items/show/3545.

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