Managing in the trenches of consumer care: the challenges of understanding and initiating the advance care planning process.

Managing in the trenches of consumer care: the challenges of understanding and initiating the advance care planning process.

Baughman Kristin R; Aultman Julie; Hazelett Susan; Palmisano Barbara; O'Neill Anne; Ludwick Ruth; Sanders Margaret

Journal of gerontological social work

2012

1905-07

To better understand how community-based long-term care providers define advance care planning and their role in the process, we conducted 8 focus groups with 62 care managers (social workers and registered nurses) providing care for Ohio's Medicaid waiver program. Care managers shared that most consumers had little understanding of advance care planning. The care managers defined it broadly, including legal documentation, social aspects, medical considerations, ongoing communication, and consumer education. Care managers saw their roles as information providers, healthcare team members, and educators/coaches. Better education, resources, and coordination are needed to ensure that consumer preferences are realized.

*Health Personnel/psychology/standards; *Health Services for the Aged; *Long-Term Care/methods/organization & administration/psychology; *Patient Care Management/methods/organization & administration; Advance Care Planning; Advance Care Planning/*organization & administration; Attitude of Health Personnel; Case Management; Convenience Sample; Decision Making; Family Relations; Focus Groups; Funding Source; Human; Humans; Interpersonal Relations; Long Term Care; Needs Assessment; Nurse Attitudes; Ohio; Patient Education as Topic; Professional Role; Professional-Patient Relations; Qualitative Research; Qualitative Studies; Social Work/*standards; Social Worker Attitudes; Terminal Care/organization & administration/psychology; Thematic Analysis

Article information provided for research and reference use only. All rights are retained by the journal listed under publisher and/or the creator(s).

721–737

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